You probably have come to this site because you, a family member, or a friend has neurofibromatosis. We hope you will find the information you need here or through one of the many links we have provided. While the diagnosis of NF can be frightening, it also means that you have found New Friends. You […]

Who We Are

Neurofibromatosis Northeast is a non profit 501(c)(3) organization incorporated (as Neurofibromatosis Mass Bay Area) in 1988 by a group of people who were in some way affected by the genetic disorder known as neurofibromatosis (NF). In recent years the name Neurofibromatosis Northeast was adopted to better describe the area we serve: Massachusetts, Maine, New Hampshire, […]

What is NF?

Neurofibromatosis, pronounced neuro-fibroma-tosis, is a genetic disorder of the nervous system that causes tumors to form on the nerves anywhere in or on the body at any time. NF affects all races, all ethnic groups and both sexes equally. NF affects more people than Cystic Fibrosis and Muscular Dystrophy combined! There are three distinct forms […]

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