Welcome

You probably have come to this site because you, a family member, or a friend has neurofibromatosis. We hope you will find the information you need here or through one of the many links we have provided. While the diagnosis of NF can be frightening, it also means that you have found New Friends. You are not alone.

Perhaps, we can help by introducing you to individuals or families in your area who are living with NF. Or, you may wish to visit the NF Network Message Board where you will meet New Friends who will provide information and support. And, our Photo Galleries are full of pictures of the people who make this the organization with the heart.

Please read “Who We Are” to learn about our work and how you might help us in our efforts to cure neurofibromatosis.

Learn more about Neurofibromatosis

Friends Ride for NF on September 11th

Join the fun – ride or volunteer for NF

Mark Saturday, September 11th on your calendar for the Friends Bike Ride for NF. You are invited to join Miguel and Andres Lessing and their friends to ride your bicycle on Cape Cod to raise funds and create awareness of NF.This is a great outing! And, to make it fun for all levels of riders, there are two routes – Cape Cod from end to end, or The Cape Cod Rail Trail. We can use volunteers and riders. Please contact Andres or Miguel Lessing.

Andres@lessings.net
Miguel@lessings.net

And, visit The Friends Ride for NF website

Friends Ride for NF Photos

Enjoy many photos from last year's Ride for NF here

How You Can Help

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