Leah Manth is a beautiful, intelligent 14 year old girl who has Neurofibromatosis Type 2 (NF2). NF2 is a genetic disorder in which Leah is lacking a protein. The absence of this protein means that Leah and others affected by NF2 develop tumors along nerves in both the peripheral and central nervous systems. Leah currently has several tumors in her brain and spine. She has endured 8 surgeries in the past 4 years. Leah has partial hearing loss in her right ear requiring her to use a hearing aid. She also has facial paralysis on one side of her face due to a tumor that destroyed her facial nerve. The money raised will be used to privately fund research targeted at shrinking tumor growth in NF2 patients, advocacy efforts for continued funding of NF research on a federal level, as well as to support NF2 awareness efforts and outreach materials. Our Run4Leah/CureNF fundraising effort is fueled 100% by volunteers!
Despite Leah’s medical problems she is a happy, normal 9th grader who desperately just wants to be a little girl. Leah runs cross country, track, and has a 95 average. Anyone who comes in contact with her is amazed at her courage and positive view on life.
Leah is truly an inspiration to everyone who meets her. Visit Leah’s blog at leahmanth.com.