Community Consulting Teams of Boston (CCT) is working with Neurofibromatosis Northeast (NFNE) to help understand what we are doing well and how we could improve our support and services to patients and families.
CCT is a not for profit organization comprised of business school graduates who are interviewing a broad array of NFNE’s stakeholders including patients, families, board, staff, neurofibromatosis (NF) clinicians and researchers.
We would appreciate 15 minutes of your time to understand your NF support needs. All replies will be confidential. The survey is open until May 5, 2017. You may forward the survey link to other NF patients, families or friends within the New England and New York area.