Join our awareness campaign and help spread the word!
Neurofibromatosis affects more people than cystic fibrosis and muscular dystrophy combined, yet most people have never even heard of it. Many people have trouble pronouncing the word neurofibromatosis.
Neurofibromatosis Northeast has launched our #TheWordIs campaign to generate more awareness of neurofibromatosis and the many people this disorder affects. Our goal is to spread the word “neurofibromatosis” across social media so that it is known in every household.
How to Participate
Record a video of yourself saying “neuro-fibroma-tosis” (do your best!). Post it to social media, then tag Neurofibromatosis Northeast! When you post your video, use the text box to challenge your business associates, friends and family to do the same. Get them to join you and have fun with it – we know it’s a tough word to say!
For Twitter, use @NFNortheast.
For Facebook, use @NFincNE.
For Instagram, use @nfnortheast.
And don’t forget to include our hashtag, #TheWordIs!
You can also link back to nfincne.org, spread important information about neurofibromatosis, or share your own experiences. Whatever the case, let’s make this a far-reaching Neurofibromatosis Awareness Campaign!
Remember, #TheWordIs Neurofibromatosis!
Don’t forget to grab one of our t-shirts! Wearing them around town will also help us spread more awareness!
*Please note, these shirts run small. Order at least one size up!
You can also support our campaign by adding our banner to your profile picture and posting about your support!
Of course, the easiest way to help is to donate.