Advocacy Toolkit

Here, find the tools and information you can use to speak out for neurofibromatosis (NF).

Remember: Your personal story about neurofibromatosis is what will inspire your elected officials to take action, so make sure it’s incorporated in all of your communications.

• Hints for visiting your Member of Congress
• Scheduling an appointment
• Frequently Asked Questions
• Sample Letter to Your Member of Congress
• Public Policy 101 – Learn how a bill becomes a law, how many people in Congress represent you, and other useful information about government, elections, political parties and more.