A Powerful Advocacy Tool
What tends to stick in your mind, statistics or personal stories? For most people, including Members of Congress, personal stories can have a strong influence on how issues are perceived. Telling your neurofibromatosis story shows your Member of Congress just how important fighting NF is to you.
Tell your neurofibromatosis story, it will make a difference. If possible, include pictures with a printed version of the story. Find your representative and senators here. Make sure to include your address. Email your letter to firstname.lastname@example.org (or mail to NF Northeast, 9 Bedford St. Burlington, MA 01803) and we will bring them to your congressional representatives when we go to Capitol Hill in February.