The Multidisciplinary Neurofibromatosis Program invites you to… A Step by Step Guide to the IEP Do IEP meetings make you nervous? Do you find all the special education ‘lingo’ confusing when discussing the IEP? Would you like to feel more comfortable advocating for your child at the IEP team meeting? Then please join Meredith […]

Join us on Saturday, September 30th for the 4th Annual Steps2Cure NF Walk/Run at the Crossings of Colonie, The South Pavilion in Loudonville, NY. Bring your friends and family for a 5K walk or run and enjoy refreshments, raffles and fun afterwards. Join by yourself or form a team. The first 50 participants to register […]

Sunday, October 22, 2017 Registration Opens at 9:00 am Steps2Cure NF is a 3 mile walk and/or officially timed run around beautiful Lake Quannapowitt  in Wakefield, MA. It is a popular annual event where NF families and friends come together to make a difference in the fight to cure NF. Last year over 400 people attended, […]

The 8th Annual Committed to Curing NF Event at Anthony’s of Malden takes place on Saturday, November 4th, and will be hosted by Melissa and Mike Malerba in honor of their son Jonathan. This is a very popular event where NF families and friends have a chance to socialize, enjoy great food and fun, and […]

The Grasso Family and Glennpeter Jewelers will host a fundraiser from 5:30PM to 7:30PM on Friday, November 17th at the Glennpeter Jewelers Diamond Center at 1544 Central Avenue in Albany. The Grasso’s have established the Rebecca Grasso Fund within Neurofibromatosis Northeast to support medical research to find a cure or treatment options for people with […]