If you are new to the world of neurofibromatosis and are not sure where to turn, please consider contacting one of our Regional Contacts for support in your area, or just a friendly voice. Below is a list of names and email addresses of families across the northeast, families like yours.
Connecticut: Anne McCluskey – Am64m@Comcast.net
Maine: Yvonne Batson – email@example.com
Massachusetts: Linda Yew – firstname.lastname@example.org
New Hampshire: Donna Roche – email@example.com
New York, Buffalo Region: John and Linda Manth – firstname.lastname@example.org
New York, northeastern area: Melissa Dufrane-Hellijas – email@example.com
New York, Rochester region: Cheryl Hungerford – firstname.lastname@example.org
New York, Long Island area: Kristen Parker/Ashley Graziano Foundation – KrissyP822@aol.com
New York, Central and Upstate area: Joe Brayman – email@example.com
Please call or email any of the contacts in New York, regardless of region. They’ll love to hear from you!
Rhode Island: Marjorie Ball – firstname.lastname@example.org
Vermont: Kathy Butler – email@example.com