September 11, 2010;
Mark Saturday, September 11th on your calendar for the Friends Bike Ride for NF. You are invited to join Miguel and Andres Lessing and their friends to ride your bicycle on Cape Cod to raise funds and create awareness of NF.
This is a great outing! And, to make it fun for all levels of riders, there are two [...]
September 19, 2010; The Roche family of New Hampshire organizes a group of volunteers to work at the Nascar Races at the New Hampshire Speedway. In exchange for their volunteer work, the Speedway writes a check to NF!
If you’d like to volunteer to help NF and also enjoy the excitement of NASCAR, contact Donna Roche at ashbritt@tds.net
To see photos from last [...]
September 26, 2010; 9:00 am to 12:00 pm.
Steps 2 Cure NF is a 2 mile walk and a 4 mile run around Horn Pond in Woburn, MA. Lori Ryan is the Chairperson and along with her dedicated committee has planned another great event.
This is a wonderful opportunity for NF patients, families and friends to come out to support NF and create awareness.
There [...]
October 4, 2010; 9:00 – 9:45 AM Registration
Coffee, Continental Breakfast
Warm up
10:00 AM Shotgun Start – Scramble
3:00 PM – 5:00 PM Barbeque Dinner
October 10, 2010; Derek Brown has set a lofty goal..to run a marathon in every state in the US. Derek is doing this because his brother Austin has NF1 and this is a way to increase awareness and raise funds for research.
On October 10th he will be joined by his father Jeff and cousins Hilary and Sarah as [...]
October 24, 2010; The Harvard Medical School Center for Neurofibromatosis and Allied Disorders (CNfAD) will sponsor a symposium on Sunday, October 24th.The symposium, for NF patients and families, will be held at the Simches Research Building, 185 Cambridge Street in Boston.
There will be:
Updates on the latest research and clinical trials
A lab tour
Ask the neurofibromatosis experts
Meet other families [...]
October 25, 2010; On Monday, October 25th John Driscoll and Jay Hamilton will represent NF, Inc., Northeast in Ireland at the Dublin Marathon. Their inspiration is 3 year old Jonathan Malerba who has NF and is shown with them in the picture.
Jonathan’s parents are dedicated to promoting research to cure NF so that Jonathan will have a brighter [...]
November 12, 2010; 6:00 pm to 11:00 pm. Melissa and Michael Malerba invite you to attend the first annual Committed to Curing NF fundraising event that they are hosting in honor of their three year old son Jonathan (shown in photo). The date is Friday, November 12, 2010 from 6PM to 11PM at Anthony’s of Malden 105 Canal Street, Malden, MA.
It will be [...]
