NF, Inc., Northeast President, Dr. Paul Epstein (on right), announced the NF Champions Grant at the 25th Annual NF Golf Tournament. The grant for $100,000 was presented to Dr. James Gusella, Director of the Harvard Medical School Center for NF and Allied Disorders and is in honor of KC Jones, Tommy Heinsohn, Dwight and Susan Evans and Alan and Harriet Lewis. Alan and Harriet, of Grand Circle Corporation, have been the Presenting Sponsor of the International tournament for the past 25 years. KC Jones was the first Honorary Chairman and served for seven years. He was followed by Tommy Heinsohn for thirteen years, and Dwight and Susan Evans have been Honorary Chairpersons for the past five years.
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May is NF Awareness month and the Governors in the Northeast sign proclamations and meet with NF patients and families.
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Michaela Bero was recently honored at The Patriots Charitable Foundation annual Community MVP awards luncheon at Gillette Stadium. Twenty one individuals from around New England were honored for their exemplary volunteer service with a variety of organizations. Robert Kraft and his son Jonathan, who is in charge of the Charitable Foundation, presented the awards along with Sarah Libby, the president of the Fidelity Charitable Gift Fund, Patriots executive director of community affairs Andre Tippett, and running back Kevin Faulk, while coach Bill Belichick shook hands and posed for pictures with the honorees. Michaela was honored for organizing "Pennies from Heaven" for Neurofibromatosis, Inc. Northeast. Michaela created the townwide coin collection project three years ago, along with her friend David Santos, because each has a cousin who has NF. Pennies from Heaven has gone well beyond just pennies and to date has earned almost $13,000. In Michaela's honor, NF, Inc., NE received a $2,500 donation from the Charitable Foundation. We congratulate Michaela for receiving this well deserved honor, and thank her for her outstanding work on behalf of NF.
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The Roche family of New Hampshire organizes a group of volunteers to work at the Nascar Races at the New Hampshire Speedway. In exchange for their volunteer work, the Speedway writes a check to NF! NF thanks the Roches and all the volunteers who make this happen!
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Michaela Bero and David Santos call their fundraising project, “Pennies from Heaven”. They organize a town wide spare change collection day because each one has a cousin with neurofibromatosis. They have a dedicated group of volunteers who have helped them raise almost $13,000 in the past three years.
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Brian Simpson's Day Spa hosts a Cut-a-Thon with a proceeds of the day going to NF. Brian does this in support of the LeColst Family.
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Kallie McGonagle and friends at The Walnut Square Elementary School where students and their families collected nickels for NF at their February fundraiser.
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NF, Inc was chosen to be the recipient of funds raised at the annual fashion show at Endicott College.
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Sheila and Mike Eisenstadt are famous for planning great events. They have done a Toga Party, A Hoe-Down, A south Beach Party, and of course their Amazing Race. The pictures show what a fabulous time they have, and all proceeds support the NF Clinics in Boston
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Karen Peluso, Executive Director of Neurofibromatosis, Inc., Northeast has been honored for her efforts to educate the public and help find the cure for neurofibromatosis. Karen received the “Changing People’s Lives Award” during the 4th Annual Grand Circle Foundation Dinner in Boston. The award recognizes an individual who has achieved outstanding results despite overcoming extraordinary obstacles and who has significantly impacted the lives of others through risk taking, entrepreneurial spirit and leadership. The award includes a $25,000 gift to Neurofibromatosis, Inc., Northeast in honor of Karen. Congratulations!
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NF, Inc, NE held a ribbon cutting ceremony for the opening of the Harvard Medical School Center School for NF and Allied Disorders. Shown in the photos are invited guests at the reception and lab tour.
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Dr. Mia MacCollin was the Director of the NF Clinic at MGH. Upon her retirement, NF Inc. planned a celebration on her behalf which included all her favorite patients and dogs.
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