If you are new to the world of neurofibromatosis and are not sure where to turn, please consider contacting one of our Regional Contacts for support in your area, or just a friendly voice. Below is a list of names and email addresses of families across the northeast, families like yours.
Connecticut: Anne McCluskey – Am64m@Comcast.net
Maine: Yvonne Batson – cbatson2@Roadrunner.com
Massachusetts: Linda Yew – lyew@nfincne.org
New Hampshire: Donna Roche – donna.tom86@gmail.com
New York, Buffalo Region: John and Linda Manth – jmanth7028@aol.com
New York, northeastern area: Melissa Dufrane-Hellijas – mhellijas@aol.com
New York, Rochester region: Cheryl Hungerford – cherylhungerford@aol.com
New York, Long Island area: Kristen Parker/Ashley Graziano Foundation – KrissyP822@aol.com
New York, Central and Upstate area: Joe Brayman – jbrayman1977@yahoo.com
Please call or email any of the contacts in New York, regardless of region. They’ll love to hear from you!
Rhode Island: Marjorie Ball – x_margie_x@mac.com
Vermont: Kathy Hubbard – zibadoo@juno.com
