Neurofibromatosis, Incorporated, Northeast

Neurofibromatosis, Incorporated, Northeast
  • Welcome
  • Who We Are
    • Who We Are
    • What We Do
    • Board of Directors
    • What is NF?
    • How You Can Help
    • Video
  • Useful Links
    • Useful Links
    • Regional Contacts
    • NF Network Message Board
    • Newsletters
  • Events
    • Recent Past Events
  • Photos
    • Happenings You May Have Missed
    • Marathons
    • Golf Tournaments
    • Camp New Friends
    • Table for TEN
    • Friends Bike Ride For NF
    • Steps2Cure NF Run/Walks
    • Coast to the Cure Bike Ride
    • Advocacy
  • Advocacy Toolkit
    • Visiting Congressional Offices
    • Schedule an Appointment
    • Tell Your Story
    • Frequently Asked Questions
    • Sample Letter
    • Representatives Who Signed On
  • Contact Us
  • Donate to NF
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Useful Links

For a list of regional contacts in your area, please visit this link

The Neurofibromatoses

  • National Institute of Neurological Disorders and Stroke (NINDS)
  • NF2 ~ Advocure
  • NF2 Crew
  • What Is Schwannomatosis?
  • Genetics – NF1
  • Genetics – NF2

NF Clinics, Physicians and Hospital links

  • Children’s Hospital Boston NF Clinic – NF1
  • Massachusetts General Hospital NF Clinic – NF1, NF2, Schwannomatosis
  • National Medical Resource Directory
  • Clinical Trials – Neurofibromatosis

Resources by State

  • Connecticut, Office of Special Education
  • Maine, Parent Federation/SPIN
  • Massachusetts, Federation for Children with Special Needs
  • New Hampshire, Special Education
  • New York, Special Needs Resources
  • Rhode Island, Department of Education Resources
  • Vermont, Special Needs Resources

Learning Disabilities

  • Learning Disabilities Association of America

National NF Programs and Fundraisers

  • Buddy the Bear and the NF Buddies Book for children
  • Camp New Friends
  • National Doodle Day

NF Products

  • NF Note Cards with artwork by youngsters who have NF
  • NF shirts mugs, buttons and more

Social Security and Disability

  • Social Security and Disability Resource Website

Friends in the NF Community

volunteers6

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Upcoming Events

  • April 4, 2012:
    • Table for TEN (6:00 pm)
  • April 16, 2012:
    • Boston Marathon (all day)
  • June 18, 2012:
    • 27th Annual Golf Tournament at The International (all day)
  • July 15, 2012:
    • Camp New Friends (12:00 am)
  • September 8, 2012:
    • Coast to the Cure – Bike Ride for NF! (all day)

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© 2012 Neurofibromatosis, Incorporated, Northeast   •  9 Bedford Street, Burlington, MA 01803   •  781-272-9936