How You Can Help

Talk About Neurofibromatosis

One of the biggest obstacles we face in providing support for NF patients and families is the lack of knowledge about neurofibromatosis.  Talk to everyone you know about neurofibromatosis.  Teach them how to pronounce it: neuro-fibroma-tosis.  Let them know that NF affects more people than muscular dystrophy and cystic fibrosis combined.  Tell your friends and family about NF research, and it how it will help anyone suffering from similar symptoms.  The more we spread the word about neurofibromatosis, the more we are helping each other.

Plan a Fundraiser

NF, Inc., Northeast depends on support from people like you; 75 percent of our income comes from events and fundraisers, which means we need your help to raise money.  Consider planning a small event in your community, such as a bake sale, or a spare change collection drive on behalf of Neurofibromatosis, Inc., Northeast.  Or, perhaps you could organize a golf tournament or road race. Need an idea?  Call the office, or email us for suggestions.

Help promote government funding of NF research

Since 1996, NF, Inc., Northeast has been an active member of the National NF Coalition, an advocacy group that works with Congress to promote government funding of NF research. It is important to note that this funding goes to scientists who apply for grants through a peer review process. NF, Inc., NE receives no government funds.

You can help by writing to your representatives in the House and Senate and tell them that you want continued, and increased funding for NF research at both the National Institutes of Health NIH and the Department of Defense’s Congressionally Directed Medical Research Program CDMRP. To find your representatives in Congress go to this link.

Donate your vehicle to NF

NF, Inc., Northeast is now accepting vehicle donations.  For more information open this vehicle donation form.