Our thanks to Mike Losier and Scot DeDeo for running the Boston Marathon for NF on Monday, April 17, 2017. They both finished strong and here are a few pictures of them looking great at Mile 17. If you have not had a chance to show your support, follow these links to their fundraising pages.
Table for TEN
Dan Andelman host of the Phantom Gourmet and Donato Frattaroli proprietor of il Molo were Honorary Co-Chairs of the 18th Annual Table for TEN on April 5, 2017. Twenty two of Boston’s upscale restaurants participated in the event, and following their elegant dinners guests gathered at the University of Massachusetts Club to enjoy dessert, live entertainment and auction and raffles. Follow this link to enjoy the photos from the evening.
“Awareness is Key” Comedy Night
Bill and Kim Palmer are owners of Palmer Lock and Key and have an ongoing campaign to create awareness of NF called “Awareness is Key”. On Saturday, November 19th they hosted their 3rd Annual Awareness is Key Comedy Night in Raynham, MA to benefit NF. Those in attendance enjoyed dinner followed by hilarius comedians including headliner Steve Sweeney! Enjoy photos of the event here.
Committed to Curing NF
The 7th annual dinner event was held on Saturday, November 5th at Anthony’s of Malden, MA and drew a crowd of over 400 people! This year attendees also enjoyed casino tables in addition to comedian Paul Gilligan, great food and hundreds of prizes. The organizers, Melissa and Mike Malerba, joined with their family and friends to put on another amazing fundraising event with all funds going to support NF. We are grateful to the Malerbas, the volunteers and the supporters for their hard work and generosity. Many great photos are available here.
10th Annual Steps2Cure NF – Wakefield, MA
Hundreds of NF patients, supporters and friends came out to celebrate the 10th Annual Steps2Cure NF Walk and 5K Run on Sunday October 23rd. The festivities took place at the beautiful Lake Quannapowitt in Wakefield, MA. In addition to the popular Kid’s Dash, an 5K officially timed race and the walk around the lake everyone enjoyed hot dogs, chili, ice cream and many refreshments. Our thanks to Emily Riemer of WCVB TV5 who joined us again as MC and also filmed a Wake Up Call about neurofibromatosis for the morning news. Photos from the day can be seen in our Google Albums or on our Facebook Page.
Steps2Cure NF Loudonville/Colonie New York
The 3rd Annual walk/run to benefit NF brought together over 100 NF patients, families and supporters to raise funds and create awareness. The event took place on a beautiful fall day at The Crossings of Colonie and everyone enjoyed great food, prizes and fun. Many photos are here.
Fall Golf Classic
The 18th annual Fall Golf Classic took place Monday, September 26th at the Four Oaks Country Club in Dracut, MA. Our thanks to the law office of Patrick Callahan, P.C., New England BioLabs, Dassault Systemes and Apex New England Construction for being the Platinum Sponsors of this great event. This fun day of golf brings many NF families and friends together to join in the fight to raise funds for NF research. Enjoy many photos from the day here.
Coast to the Cure NF Bike Ride – 2016
The Coast to the Cure Bike Ride took place on September 10th! It was a picture perfect day in Gloucester and 170 cyclists were out on the roads riding for NF. Participants had the choice of a Century ride, a 66 mile ride or a 24 mile ride and all routes offered beautiful vistas of the coast and rural areas throughout the North Shore of Boston. After the ride everyone gathered to share their stories and enjoy a fabulous BBQ lunch at Stage Fort Park in Gloucester. You can still make a donation to a rider’s fundraising page by clicking here. Many photos from the day can be seen here.
The Falmouth Road Race – 2016
Twenty runners represented NF at the 44th Annual Falmouth Road Race. It was a a beautiful sunny day on Cape Cod, and not only did our runners have a great time participating in this popular event, they created awareness and raised funds for NF. You can see pictures of the runners here.
31st Annual NF Golf Tournament at The International GC
Not many charity golf tournaments have survived 31 years! The great success of this enduring and highly regarded event is a tribute to the generous sponsors and dedicated committee who are committed to end NF! There are many photos for your enjoyment here.
Steps2Cure NF – Camden, NY
The Third Annual Steps2Cure NF Walk in Camden, NY took place on Saturday, May 21, 2016 at Forest Park. This event grows every year as more NF patients, families and friends come out for a 2 mile walk and enjoy refreshments, raffles and fun afterwards. See the great photos from the day here.
Hats, Horses and Hope
A Kentucky Derby Party to benefit NF Northeast, complete with Mint Juleps, horse betting, food and music. New friends and old donned their most outrageous hats and outfits and came together to support the Race to Cure NF!