Useful Links
For a list of regional contacts in your area, please visit this link.
The Neurofibromatoses
- National Institute of Neurological Disorders and Stroke (NINDS)
- NF2 ~ Advocure
- NF2 Crew
- What Is Schwannomatosis?
- Genetics – NF1
- Genetics – NF2
NF Clinics, Physicians and Hospital links
- Children’s Hospital Boston NF Clinic – NF1, NF2
- Massachusetts General Hospital NF Clinic – NF1, NF2, Schwannomatosis
- National Medical Resource Directory
- Clinical Trials- Neurofibromatosis
NF1 Patient Registry
Resources by State
- Connecticut, Office of Special Education
- Maine, Parent Federation/SPIN
- Massachusetts, Federation for Children with Special Needs
- New Hampshire, Special Education
- New York, Special Needs Resources
- Rhode Island, Department of Education Resources
- Vermont, Special Needs Resources
