Regional Contacts

If you are new to the world of neurofibromatosis and are not sure where to turn, please consider contacting one of our Regional Contacts for support in your area, or just a friendly voice.  Below is a list of names and email addresses of families across the northeast, families like yours.

Connecticut: Anne McCluskey – Am64m@Comcast.net

Maine: Yvonne Batson – cbatson2@Roadrunner.com

Massachusetts: Linda Yew – lyew@nfincne.org

New Hampshire: Donna Roche  – donna.tom86@gmail.com

New York, Buffalo Region: John and Linda Manth  – jmanth7028@aol.com

New York, northeastern area: Melissa Dufrane-Hellijas  – mhellijas@aol.com

New York, Rochester region: Cheryl Hungerford  – cherylhungerford@aol.com

New York, Long Island area: Kristen Parker/Ashley Graziano Foundation – KrissyP822@aol.com

New York, Central and Upstate area: Joe Brayman –  jbrayman1977@yahoo.com

Please call or email any of the contacts in New York, regardless of region.  They’ll love to hear from you!

Rhode Island: Marjorie Ball – x_margie_x@mac.com

Vermont: Kathy Hubbard – zibadoo@juno.com