Neurofibromatosis Northeast has provided research grants to scientists at leading institutions around the country. We are proud to have been the impetus behind the creation of The Harvard Medical School Center for NF and Allied Disorders (CNfAD).
The CNfAD is a virtual center whose mission is to define the pathogenetic mechanisms that cause NF1, NF2 and related disorders, and to develop and test rational treatments for these disorders by facilitating interdisciplinary approaches to NF research and promoting cooperative research studies between Harvard affiliated institutions and their laboratories.
NFNE meets regularly with scientists at the National Institutes of Health (NIH), and we nominate consumer representatives to participate on the peer review panels for the Congressionally Directed Medical Research Program (CDMRP) for NF. Past consumer reviewers include Lori Ryan, Andres Lessing, Gerry Patterson, Linda Yew, Michelle Hirsch Donovan, Linda Manth, Marissa Shaw and Lindsay Rosenfeld.